Kenneth | Blank Children's Kid Captain

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Kenneth

Kenneth Pilcher has a positive outlook on life and loving nature despite facing many health and developmental issues.  

“Kenneth has always been so loveable to everyone,” said Kenneth’s mom, Kristal Irwin.  “He struggles every day, but he tries his hardest. He has inspired others by never giving up and loving other people, especially others who struggle.” 

Kenneth has Chiari malformation, a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is abnormally small or misshapen, pressing on the brain and forcing it downward. Kenneth is also missing a chromosome that has caused speech and developmental delays. When it comes to his physical condition, his bone growth is about two and half years behind his actual age. 

“Our family has been impacted a lot,” Kristal said. “His sisters have become understanding of him. They miss a lot of things because I am a single mom and have to work around his therapy schedule.”  

Kenneth’s current care schedule includes speech therapy every week at Blank Children’s Hospital. He also has occupational therapy and speech therapy at school every week. He is on several different medicines and has inserts in his shoes. Kenneth also has appointments with a neurologist every three months. 

As doctors learn more about his condition, Kenneth continues to receive more diagnoses but he and his family choose to react with compassion.  

“All of this has changed our outlook on kids with special needs,” Kristal said. “His sisters are extra caring towards those with special needs and always make sure they are not left out.”