Joshua & Jordan Miover
Early in their lives, twins Jordan and Joshua Miover faced challenges. When Joshua was born, he had some problems with his heart and lungs which led to a two week stay in the NICU
at Blank Children's Hospital. Once at home, the twins' mom, Staci, began to notice some feeding problems, difficulty sleeping and colic. And while this can be common with infants, Staci soon realized that something might be wrong with her boys.
In 2003, at 9 months old, Jordan and Joshua began vomiting very frequently and couldn't keep any food down. They were losing weight instead of gaining weight - weighing only 14 or 15 pounds. After extensive evaluation, the twins were diagnosed with William's Syndrome, a disorder characterized by cardiovascular difficulties, developmental delays and learning disabilities. It affects only one in 10,000 people.
Because of the rarity, Jordan and Joshua were taken to Mayo Clinic for a week of evaluation, testing and treatment. And a month and a half later, they were then back at Blank Children's PICU
for more treatment.
"The first year, we were in the Blank Children's Pediatric Clinic
so often we got to know much of the staff, and everyone there has just been so good to us," Staci said. "Dr. Pete Hetherington
is an amazing doctor."
Blank Children's also helped Jordan and Joshua begin early interventions to assist the boys in their development.
"The hospital introduced Early Access to us, which is where the boys began to get speech, physical and occupational therapy," Staci said. "The therapists worked with them while in the hospital as well as when they were home or at daycare. It was a Godsend."
The twins, now 8-years-old, outgoing and energetic, are thriving and constantly interacting and involved. Baseball, soccer and swimming are just a few of the activities the boys enjoy. Jordan and Joshua, with their tough spirits and never-give-up attitudes, have made leaps and bounds in their growth.
"When they were in the hospital, my mom made the comment that she prayed one day I would have two wild, little monkeys running around," Staci said. "We laughed about it and said how nice that would be. I now have those two wild, little monkeys so I know prayers are sometimes answered."