Jacob's Story | 2013 Kid Captain at Blank Children's Hospital

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Blank Children's Hospital


Jacob Dodson was born ten weeks early and found to have periventricular leukomalacia with resultant quadriplegic cerebral palsy. This disease can be variable in how it affects children from no impairment to significant motor impairments that are different for each child. Jacob's primarily affects his arms and legs.

"Jacob's condition makes us a very busy family, but this is what Jacob knows. He has to have accommodations and special equipment for most things he does, but he still participates in most everything. There is very little he doesn't get to do," said Lori, Jacob's mom.

Jacob loves any and all sports. He asks to watch Cardinals baseball every day. He plays Miracle League baseball and participates every week in a power wheelchair soccer league. He loves to go to Cyclone football and basketball games. He loves to swim and he is also a roller coaster junkie.

In March of 2012, Jacob had a rhizotomy and stayed in the hospital for six weeks having daily therapy consisting of physical therapy, occupational therapy, and recreational therapy in addition to hours each day of tummy time and standing. He is now doing physical therapy three days a week at Blank Children's Hospital and once a week at school. He stands and does tummy time for an hour each day as well as walking on the treadmill 10 minutes a day. Through all of these therapies Jacob tries to complete every task and keeps on going until he can't go anymore.

"I am so proud of Jacob just in general; he always amazes me how much he participates and tries in therapy. Even after all of these years, he still goes without complaint and works hard," said Lori. "He still has so far to go, but he continues to persevere."

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