Introduction to Survivorship Clinic
Rapid improvements in the treatment of childhood cancers have led to greatly increased survival with a growing population of nearly 400,000 long-term childhood cancer survivors in the United States. Despite present medical capabilities to cure >80% of patients with childhood cancer, as many as 90% of these childhood cancer survivors have some form of chronic health problem after therapy.
At the Blank Children's Hospital Pediatric Cancer Survivorship Clinic, our mission is to provide quality comprehensive care and support for childhood cancer survivors. Through the coordinated efforts of a multidisciplinary team, we work to prevent, identify, and provide specialized services for late effects.
Our physicians and specialists will evaluate survivors' past cancer treatment and current health, while also recommending ways to maintain good health in the future. Each patient will receive individualized care based on his or her medical history and future medical needs.
Your Visit With Us
Survivors are eligible to enter our program after two years of not receiving any cancer treatment. There are no age limitations to enter the program and it is open to any survivor - not just survivors who received treatment at Blank Children's Hospital.
Before Your First Visit
Before your first visit, we will need some information about you. This information includes:
- A healthcare provider referral letter (patient may also self refer into the program)
- Medical records
- Insurance information
- A completed health questionnaire
Appointments are available two to three afternoons of the week with our pediatric oncologists and clinical nurse specialists. Our physicians and staff are able to connect and refer patients to appropriate resources within UnityPoint Health, should they be needed.
What to Expect at Your First Long-Term Follow-Up Appointment
Survivors will meet with members of our team including a survivorship care coordinator, pediatric oncologist, pediatric psychologist and social worker.
Each survivor will be provided with a comprehensive treatment summary describing the treatment they received and the long-term effects for which they are at risk. Health recommendations to monitor for long-term effects and stay healthy will be provided.
As part of this summary, survivors will be provided access to this information electronically through a Passport for Care: https://cancersurvivor.passportforcare.org/. This allows for viewing information and health links anytime, anywhere.
As needed, we may provide referrals to social, community, medical and psychiatric resources or specialists.
In order for our team to provide you with a thorough evaluation and educational experience, please plan on being in clinic for about 60-90 minutes during your visit.