Resources for Family Caregivers
Advanced Health Care Planning
- Caring Connections: State specific advanced directives.
- Five Wishes: Living will that expresses personal needs including medical, personal, emotional and spiritual.
Housing, Assisted Living, Home Health & Hospice Care
Individual and Family Counseling
- Caregiver Health Insurance and Mental Health Benefits: Determine if the caregiver carries a medical insurance and is eligible for mental health services.
- LiveStrong: Free confidential counseling referrals for patients and caregivers.
- National Alliance on Mental Illness: The nations largest grassroots mental health organization.
- National Substance Abuse and Mental Health Service Administration: Substance abuse and mental health services.
- Oncology Social Workers: refer to an oncology social worker in your facility who provides therapeutic services to FCGs and patients throughout continuum of care.
- Hospital Programs: Refer to behavioral health, psychologists in staff in your facility to provide counseling.
- Brenda Mehling Cancer Fund: Provides Financial Assistance for medical and legal services, housing, home healthcare, travel, phone bills for cancer patients.
- Cancer Legal Resource Center: Free and confidential information for cancer related legal issues.
- Chronic Disease Fund: Financial assistance for expediting therapy.
- Feeding America: The nation's leading domestic hunger relief charity.
- Give Forward: Online tool that allows friends and family to send financial support to patients as they navigate a medical crisis.
- HealthWell Foundation: Financial assistance for eligible individuals to cover coinsurance, copayments, healthcare premiums and deductibles for certain treatments.
- Lazarex Cancer Foundation: Financial assistance to defray the costs associated with with patient participation in FDA trials.
- Merck Patient Assistance Program: Assistance with prescription drugs for those who cannot afford them (mainly the uninsured).
- National Organization of Rare Disorders: Provides advocacy, education and other services to improve the lives of all people affected by rare diseases. Assistance with life-saving medications, insurance premiums, co-pays, etc.
- Partners in Care Foundation: Programs include aging well, access to care, education/advocacy, prevention, and end-of-life care. The families at risk program assists with financial issues for vulnerable and under served children and families who face a disability, chronic illness or catastrophic life event.
- Partnership for Prescription Assistance: Helps qualifying patients without prescription drug coverage get the medicines they need for nearly free.
- Patient Access Network Foundation: Offers to help people with chronic illnesses for whom cost limits access to breakthrough medical treatments (co-payment assistance programs for many types of cancer, chronic illness, and rare diseases).
- Patient Advocate Foundation: Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt and job retention related to their illness.
- Patient Services, Inc.: Supports people with expensive chronic illnesses and conditions through finding solutions with health insurance and assisting with premiums and prescription co-payments to facilitate positive health and well-being.
- Pharmaceutical Reimbursement Assistance Program: Helps people find assistance programs to help them afford their medication and other medical costs.
- Veterans Assistance: Health and well-being services for veterans.
- Caregiver Media Group: Produces "Today's Caregiver" magazine, topic-specific newsletters and online discussion forums for family and professional caregivers.
- CaringBridge: Free, personal and private websites that connect people experiencing a health challenge with family and friends.
- Family Caregiving Alliance: State-by-state online guides to help families locate caregiver support programs.
- Lotsa Helping Hands: Free community website to privately organize family and friends for volunteer help and to match needed tasks on an individualized calendar.
- My Life Line: Free website for caregivers and patients to build online support communities of family and friends to foster connection, inspiration and healing.
- National Family Caregivers Association: Educates, empowers and speaks for caregivers.
- Net of Care: Provides Caregiver Resource Directory, a practical guide.
- Sam Fund: Provides grants to young adults as they move forward in their lives after cancer and caregiver support information.
- Self-Care Tips for Cancer Caregivers: Coping strategies and tips for dealing with emotions.
Sexual Health and Intimacy
- National Cancer Institute Help Line - 1-877-448-7848: Smoking cessation counselors from the National Cancer Institute are available to answer smoking related questions (English and Spanish).
- Smokefree.gov: Offers counseling, support, tools and resources to quit smoking.
Melanoma rates are on the rise and it is important to know the facts, risks and prevention techniques.
- Cancer Hope Network: One-on-one support for cancer patients and families.
- CancerCare: Online, telephone and in person supports groups for patients, caregivers and those who have lost a loved one.
- Caregiver Support Groups: Refer to caregiver support groups in the caregiver's community (hospitals, churches, hospices.)
- Imerman Angels: Personalized connections that enable one-on-one support among cancer patients and caregivers.
- Kids Konnected: Education and support for children and teens who have a parent with cancer.
- MetaCenter: A Community of Survivors and Caregivers: Resources and online support for metastatic cancer patients and caregivers.
- Lung Cancer Alliance: Phone buddy program, online support networks and peer-to-peer matching.
- American Cancer Society: Transportation assistance for patients and caregivers to and from medical appointments.
- Angel Flight Network: Air transportation for medically compromised patients and their families <1000 miles.
- CancerCare: Transportation assistance for patients and caregivers to and from medical appointments.
- Corporate Angel Network: Air transportation for medically compromised patients and their families >1000 miles.