Web Resources for Family Caregivers | AYA Cancer Program

UnityPoint Clinic Urgent Care - Altoona

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UnityPoint Clinic Urgent Care - Ingersoll

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Urgent Care - Ankeny

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Urgent Care - Lakeview

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Urgent Care - Merle Hay

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Urgent Care - Southglen

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Urgent Care - Urbandale

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Virtual Care - Receive Care Now

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Blank Children's Hospital

Resources for Family Caregivers

Advanced Health Care Planning

  • Caring Connections: State specific advanced directives.
  • Five Wishes: Living will that expresses personal needs including medical, personal, emotional and spiritual.

Bereavement

Education

Housing, Assisted Living, Home Health & Hospice Care

Individual and Family Counseling

  • Caregiver Health Insurance and Mental Health Benefits: Determine if the caregiver carries a medical insurance and is eligible for mental health services.
  • LiveStrong: Free confidential counseling referrals for patients and caregivers.
  • National Alliance on Mental Illness: The nations largest grassroots mental health organization.
  • National Substance Abuse and Mental Health Service Administration: Substance abuse and mental health services.
  • Oncology Social Workers: refer to an oncology social worker in your facility who provides therapeutic services to FCGs and patients throughout continuum of care.
  • Hospital Programs: Refer to behavioral health, psychologists in staff in your facility to provide counseling.

Journals

Legal/Financial Aid

  • Brenda Mehling Cancer Fund: Provides Financial Assistance for medical and legal services, housing, home healthcare, travel, phone bills for cancer patients.
  • Cancer Legal Resource Center: Free and confidential information for cancer related legal issues.
  • Chronic Disease Fund: Financial assistance for expediting therapy.
  • Feeding America: The nation's leading domestic hunger relief charity.
  • Give Forward: Online tool that allows friends and family to send financial support to patients as they navigate a medical crisis.
  • HealthWell Foundation: Financial assistance for eligible individuals to cover coinsurance, copayments, healthcare premiums and deductibles for certain treatments.
  • Lazarex Cancer Foundation: Financial assistance to defray the costs associated with with patient participation in FDA trials.
  • Merck Patient Assistance Program: Assistance with prescription drugs for those who cannot afford them (mainly the uninsured).
  • National Organization of Rare Disorders: Provides advocacy, education and other services to improve the lives of all people affected by rare diseases. Assistance with life-saving medications, insurance premiums, co-pays, etc.
  • Partners in Care Foundation: Programs include aging well, access to care, education/advocacy, prevention, and end-of-life care. The families at risk program assists with financial issues for vulnerable and under served children and families who face a disability, chronic illness or catastrophic life event.
  • Partnership for Prescription Assistance: Helps qualifying patients without prescription drug coverage get the medicines they need for nearly free.
  • Patient Access Network Foundation: Offers to help people with chronic illnesses for whom cost limits access to breakthrough medical treatments (co-payment assistance programs for many types of cancer, chronic illness, and rare diseases).
  • Patient Advocate Foundation: Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt and job retention related to their illness.
  • Patient Services, Inc.: Supports people with expensive chronic illnesses and conditions through finding solutions with health insurance and assisting with premiums and prescription co-payments to facilitate positive health and well-being.
  • Pharmaceutical Reimbursement Assistance Program: Helps people find assistance programs to help them afford their medication and other medical costs.
  • Veterans Assistance: Health and well-being services for veterans.

Self Care

  • Caregiver Media Group: Produces "Today's Caregiver" magazine, topic-specific newsletters and online discussion forums for family and professional caregivers.
  • CaringBridge: Free, personal and private websites that connect people experiencing a health challenge with family and friends.
  • Family Caregiving Alliance: State-by-state online guides to help families locate caregiver support programs.
  • Lotsa Helping Hands: Free community website to privately organize family and friends for volunteer help and to match needed tasks on an individualized calendar.
  • My Life Line: Free website for caregivers and patients to build online support communities of family and friends to foster connection, inspiration and healing.
  • National Family Caregivers Association: Educates, empowers and speaks for caregivers.
  • Net of Care: Provides Caregiver Resource Directory, a practical guide.
  • Sam Fund:  Provides grants to young adults as they move forward in their lives after cancer and caregiver support information.
  • Self-Care Tips for Cancer Caregivers: Coping strategies and tips for dealing with emotions.

Sexual Health and Intimacy

Smoking Cessation

  • National Cancer Institute Help Line - 1-877-448-7848: Smoking cessation counselors from the National Cancer Institute are available to answer smoking related questions (English and Spanish).
  • Smokefree.gov: Offers counseling, support, tools and resources to quit smoking.

Sun Safety

Melanoma rates are on the rise and it is important to know the facts, risks and prevention techniques.

Support Groups

  • Cancer Hope Network: One-on-one support for cancer patients and families.
  • CancerCare: Online, telephone and in person supports groups for patients, caregivers and those who have lost a loved one.
  • Caregiver Support Groups: Refer to caregiver support groups in the caregiver's community (hospitals, churches, hospices.)
  • Imerman Angels: Personalized connections that enable one-on-one support among cancer patients and caregivers.
  • Kids Konnected: Education and support for children and teens who have a parent with cancer.
  • MetaCenter: A Community of Survivors and Caregivers: Resources and online support for metastatic cancer patients and caregivers.
  • Lung Cancer Alliance: Phone buddy program, online support networks and peer-to-peer matching.

Transportation

  • American Cancer Society: Transportation assistance for patients and caregivers to and from medical appointments.
  • Angel Flight Network: Air transportation for medically compromised patients and their families <1000 miles.
  • CancerCare: Transportation assistance for patients and caregivers to and from medical appointments.
  • Corporate Angel Network: Air transportation for medically compromised patients and their families >1000 miles.