Disease-Specific Resources for Caregiver Support

Cancer

(319) 558-4876
This local resource provides patient-centered care that focuses on support services to all cancer patients and their loved ones.  This includes help for all family members and other loved ones who provide care and support for the person living with cancer.

Emotional support services for patients and their families focus on the unique needs of:
  • Family caregivers
  • Children and teens
  • Communication within the family
American Cancer Society Complete Guide to Family Caregiving: The Essential Guide to Cancer Caregiving at home.

Cancer Care  (800) 813-4673  
Offers free professional support services, including telephone counseling, online support groups and educational materials to individuals with cancer and their caregivers.

Cancer Support Community  (888) 793-9355 
Provides support for those living with cancer and their loved ones.  Offers online support groups led by professionals.

Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease)

ALS Association, Iowa Chapter

(515) 369-2572

Provides local care services to help patients and families living with ALS.  The ALS Association has an equipment loan program, monthly support groups and multidisciplinary ALS Clinics.

Muscular Dystrophy Association

(319) 393-8905

Provides an ALS Clinic, support groups, equipment loan program, online community, financial assistance for equipment repairs and tips for family caregivers.

Alzheimer's Disease and Related Dementias

Alzheimer's Association, East Central Iowa Chapter (319) 294-9699
Offers free educational programs, information and referral, support groups and caregiver training.  Access to a 24/7 help-line for patients and caregivers available at 1-800-272-3900.

Chronic Obstructive Pulmonary Disease (COPD) 

COPD Foundation (866) 316-2673
Provides educational materials and an online social network to answer questions and provide resources for caregivers.

Heart Disease

American Heart Association Caregivers (319) 536-3900
Provides educational materials, resources and an online support network.

CardioSmart American College of Cardiology

Education, support and resources for caregivers.

Parkinson's Disease

American Parkinson Disease Association (800) 223-2732 

Focuses on research, services, education and raising public awareness.  Free brochures on coping with symptoms, research and caregiving.

American Parkinson Disease Association Information and Referral Center, UnityPoint Health - Des Moines  
(877)-872-6386 or (515) 241-6379  
Statewide information about support groups, community resources and exercise classes.